Register for Ellie's Quest for a Cure

THANK YOU FOR SUPPORTING THE ELLIE WHITE FOUNDATION FOR RARE GENETIC DISORDERS The Ellie White Foundation for Rare Genetic Disorders is working to find a cure for Wolfram syndrome and other orphan diseases that receive little or no federal or private funding. We fund a research lab at the prestigious medical university -Washington University - they are making great strides towards slowing down and possibly curing this horrific disease. Our fundraising efforts have already funded the first ever fellowships for Wolfram syndrome. Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure at an early age. With no current cure, the life expectancy of a person is typically less than 30 years. Ellie White is far wiser than her 14 years. She is an inspiration to others and helps raise awareness for her fatal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram syndrome. Even though she's losing her hearing and vision, she loves life and loves to dance. Please visit our website for more information and to make a donation: www.elliewhitefoundation.org